CLEARING UP MISCONCEPTIONS

There now starts a week of clearing up misconceptions among all my medical teams who, despite ALL modern means of contact, seem to have blundered their way through to where we are today!

That was Monday, and now here we are on Thursday and ZERO progress and still no wiser. The only nurse/sec we did speak to said she would be emailing all the details including medication which needs to be picked up in Cortez for Sunday/Monday use before I check in and again NOTHING!!   I used to think Hospitals were supposed to reassure the patient in stressful times but this episode is leaving me COLD and overall VERY WORRIED by the general lack of concern and timeliness.

I also happen to be VERY CONCERNED and WORRIED by the overall operation and lack of knowledge regarding recovery time.

But I’ve already had TWO of those

Well bad luck with the Constitution

Good luck with that

Friday and I’m off to South West hospital to pick up the “new” medications for use on Sunday night! get that done and a new pack of diapers …… just in case! They do say the “bum” needs retraining after its long 8 month holiday!!!!!

“Do these pills cure ALL cancers ?”

Home again and a surprise call from the surgeon which achieves nothing  as before anything can be said she is off into surgery and now we are 3 hours down the road without a recall.

The return call comes in at 1410 when we are both getting ready to go to work. Yes, after review of the scans (which they have had since mid December) the rectal tumor is down 60% in size and under control by the chemo. The “Chemo Maintenance” will be the pills and periodic scans will let us know if it grows back again or is staying where it is. The question of the reconnect surgery, which she told me was a very simple procedure doesn’t sound quite so rosey after all and suddenly there are a whole load of risks which were not discussed during the October meeting.  What was a “nip the tumor and remove” and reconnect the pipes and get rid of the ugly stoma and bag seems now fraught with possible problems of leakage and worst case scenario of DEATH!   ……… or do nothing and keep the ugly bag! Considering all the info I had read on the internet (I’m glad I did) and now hearing from the “Expert in the field Surgeon” of all the problems I’m left with ONLY ONE choice!!!!! So the trip to Denver is now CNX despite the airline ticket which was purchased in early January to comply with their ONLY instructions. However from what I have heard, and what my mind was telling me all along I’m very pleased not to be having this op.

TONY DOWN

 

 

 

 

 

 

 

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